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Katy Wakin
SWIM 2.4 BIKE 112 RUN 26.2


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IRONMAN FLORIDA

I may have lost my mind. I’ve signed up to swim 2.4 miles, bike 112 miles and run 26.2 miles… ALL IN THE SAME DAY! There’s only one thing in this world that would make me do something as crazy as that…and that’s Denver.
Not to bore you with all the details, I’ll get right to the main point. Denver has neurofibromatosis, and I will do all I can to find a cure. The love that is within me, as a mother will define all. (Just watch…me finishing, will be defining the odds…)
Denver has had 2 surgeries to remove a neurofibroma from his optic nerve and growing back on his cranium. Although he receives regular MRI’s, his case of NF is pretty quiet at this time. The bad thing about NF is that it is progressive and we never know when it will strike.
Allow me to give you a little background on Neurofibromatosis. Neurofibromatosis is a genetic disorder and it affects the brain, spinal cord, nerves, skin, and other systems in the body. Neurofibromatosis is defined by tumors, called neurofibromas, which grow along nerves in the body, or on or under the skin. As the tumors increase in size, they can press on vital areas of the body, causing problems in the future. NF1 occurs in 1 in 3,000 births. Enlargement and deformation of bones and curvature of the spine (scoliosis) can also occur. Tumors may develop in the brain, the eyes, on cranial nerves, or on the spinal cord and may cause blindness and deafness. About 50% of people with NF1 also have learning disabilities.
In order to help find a cure, we have to raise awareness and funds for research. The Children’s Tumor Foundation is the leading organization coordinating research for NF. A great way to help is to make a donation…all proceeds go towards solving the NF puzzle (research) and are tax deductible…not to mention the joy of knowing you are making me sweat!!!
Keep an eye on us throughout our training at: www.TEAMDENVER.net
We need your help to #endNF!
My Warmest Blessings, Katy
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